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Posterior urethral valves (PUV)


Traumatic Birth experience
Hello,

I have joined this forum to see if there are any other women out there whom have had TRAUMATIC BIRTHS CAUSED BY THE STAFF AT THE HOSPITAL.

Especially, where they have been ignored by the midwife on the post-natal ward about their concerns for their newborn baby's health. And their baby has been admitted to the special care unit as an emergency, primarily with HYPOGLYCAEMIA.

And whom have had PRE-ECLAMPSIA, and have been mistreated by the maternity unit staff.

I would be very interested in anyone's stories out there, as this has affected my life since my son was born three and a half years ago.
I have not recovered properly from this event since.

Did any women experience BURNING SENSATION, AND CARDIAC ARRYTHMIAS AFTER BEING GIVEN MAGNESIUM SULPHATE DURING LABOUR.
Click here to reply
How will spd affect my labour ??
I just looked up SPD as also didnt have a clue the page says this- SPD (Symphysis Pubis Dysfunction) is...Read more


Posterior Urethral Valves (PUV for short) is a condition found only in boys and affects the urethra, the tube that runs from the bladder to the outside. In boys with PUV the urethra has a blockage in it near the bladder that makes it difficult to pass urine.

PUV is often diagnosed by a routine ultrasound scan during pregnancy if the bladder, ureters or kidneys are swollen. It can also be diagnosed in a newborn baby if the bladder is swollen and urine dribbles constantly.

Information and support for parents and parents-to-be who have a son diagnosed with this condition appears to be very limited.

We have found a good Factsheet produced by Great Ormond Street Hospital which you can access at www.gosh.nhs.uk and the following organisation may be able to put you in touch with another family in a similar situation:


Contact a Family

Contact a Family is a charity for families with disabled children. They have information on hundreds of medical conditions, many of them rare syndromes. They also have information on national and local support groups and on topics such as benefits and education.

Contact a Family
209 - 211 City Road
London
EC1V 1JN

Tel: 020 7608 8700

Fax: 020 7608 8701

Minicom: 020 7608 8702

Helpline: 0808 808 3555 Freephone for parents and families (10am-4pm, Mon-Fri)

Email: info@cafamily.org.uk

www.cafamily.org.uk

 

If anyone is aware of a PUV Support Group in the UK or abroad please let us know via contributions@forparentsbyparents.com

 

 


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Traumatic Birth experience
Hello,

I have joined this forum to see if there are any other women out there whom have had TRAUMATIC BIRTHS CAUSED BY THE STAFF AT THE HOSPITAL.

Especially, where they have been ignored by the midwife on the post-natal ward about their concerns for their newborn baby's health. And their baby has been admitted to the special care unit as an emergency, primarily with HYPOGLYCAEMIA.

And whom have had PRE-ECLAMPSIA, and have been mistreated by the maternity unit staff.

I would be very interested in anyone's stories out there, as this has affected my life since my son was born three and a half years ago.
I have not recovered properly from this event since.

Did any women experience BURNING SENSATION, AND CARDIAC ARRYTHMIAS AFTER BEING GIVEN MAGNESIUM SULPHATE DURING LABOUR.
Click here to reply
How will spd affect my labour ??
I just looked up SPD as also didnt have a clue the page says this- SPD (Symphysis Pubis Dysfunction) is...Read more


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